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KERNICTERUS |
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Parents of Infants and Children with Kernicterus (PICK) 517 Brentwood Dr. Birmingham, AL 35226 Contact: Karen Dixon (205) 979-2021 ktdixon1@home.com |
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KIDNEY DISEASE, HEREDITARY |
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Hereditary Nephritis Foundation 1390 W. 6690 S. #202H Murray, U 84123 (801) 262-5901 (phone/fax) |
-Urologic Disorders -Alport Syndrome |
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KIDNEY DISORDERS |
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American Association of Kidney Patients 106 S. Ashley Dr., Ste. 315 Tampa, FL 33602 (800) 749-2257 (813) 636-8122 (813) 223-0001 (fax) info@aakp.org American Kidney Fund 6110 Executive Blvd., Ste. 1010 Rockville, MD 20852 (800) 638-8299 (301) 881-3052 (301) 881-0898 (fax) helpline@akfinc.org http://www.akfinc.orgChild & Youth Clinical Trials Network (CYCTN) Spencer Russ, Acting Director Cheo-Research Institute 401 Smith Rd. Ottawa, ON CAN K1H 8L1 (613) 737-4098 (613) 738-4800 (fax) Kidney Foundation of Canada 300-5165 Sherbrooke St. W. Montreal, QC CAN H4A IT6 (514) 369-4806 (514) 369-2472 (fax) kathleen@kidney.ca http://www.kidney.caNational Kidney Foundation 30 E. 33rd St., Ste. 1100 New York, NY 10016 (800) 622-9010 (212) 889-2210 (212) 689-9261 (fax) http://www.kidney.orgPKD Foundation Dave Switzer, Marketing/Public Relations Director 4901 Main St., Ste. 200 Kansas City, MO 64112-2634 (800) 753-2873 (816) 931-8655 (fax) pkdcure@.pkdcure.org http://www.pkdcure.org |
-Urologic Disorders -Alstrom Syndrome |
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KLINEFELTER SYNDROME |
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49 XXXXY Syndrome Association 10001 NE 74th St. Vancouver, WA 98662-3801 (360) 892-7547 kimbj@juno.com Klinefelter's Syndrome Association, Inc. 47, XXX and 47, XYY PO Box 2119 Loomis, CA 95650 (916) 660-1599 (888) 999-9428 (toll free line) (916) 660-1899 (fax) info@genetic Klinefelter's Syndrome Association of America N5879 30th Rd. Pine River, WI 54965 (920) 987-5782 |
-Sex Chromosome Disorders, Male -47, XYY; 47, XXY; 47, XXX Syndromes |
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KLIPPEL-TRENAUNAY SYNDROME |
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Klippel-Trenaunay Support Group c/o Judy Vessey 5404 Dundee Rd. Edina, MN 55436 (652) 925-2596 jvessey@qwest.net |
-Krabbe Disease -Vascular Malformations |
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LACTIC ACIDOSIS |
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Congenital Lactic Acidosis Family Support Group 1620 Mable Ave. Denver, CO 80229 (303) 287-4953 |
-Alaninuria |
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LATEX ALLERGY |
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Latex Allergy Information Service 176 Roosevelt Ave. Torrington, CT 06790 (860) 482-6869 (860) 482-2294 (fax) debilan1@cs.com |
-Allergy -Allergy, Latex |
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LAURENCE-MOON-BARDET-BIEDL SYNDROME (LMBBS) |
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Laurence-Moon-Bardet-Biedl Syndrome Network (LMBBS) 11435 Crowhill Dr. Owings Mills, MD 21117 (888) 394-3937 (toll free) (800) 683-5551 (TDD) (410) 569-0150 (410) 771-9470 (fax) Attention: Ridia Anderson Mmarzullo@blindness.org |
-Adipogenital-Retinitis Pigmentosa- Polydactyly Syndrome |
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LEARNING DISABILITIES |
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Learning Disabilities Association of America Jane Browning Executive Director 4156 Library Rd. Pittsburgh, PA 15234 (412) 341-1515 (412) 344-0224 (fax) linfo@ldaamerica.org The Learning Disabilities Association of Canada (National Office) 323 Chapel St. Ottawa, ON CAN K1N 7Z2 (613) 238-5721 (613) 235-5391 (fax) information@ldac-taac.ca http://www.ldac-taac.caLearning Disabilities Association of New York city 27 W. 20 St., Rm 303 New York, NY 10011 (212) 645-6730 (212) 924-8896 (fax) lldanyc@earthlink.net National Center for Learning Disabilities Pazit Algazi Communications Marketing Coordinator 381 Park Ave. S, Ste 1401 New York, NY 10016 (212) 545-7510 (212) 545-9665 (fax) http://www.ld.orgParents of Gifted/LD Students 2420 Eccleston St. Silver Spring, MD 20902-4925 (301) 986-1422 (301) 924-9304 (fax) jilmeyers@aol.com http://www.geocities.com/athens/1105/gtld.htmResource for Children with Special Needs, Inc. 116 E. 16th St., 5th Fl. New York, NY 10003 (212) 677-4650 (212) 254-4020 (fax) info@resourcesnyc.org http://resourcesnyc.org |
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LESCH-NYHAN DISEASE |
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International Lesch-Nyhan Disease Association 11042 Ferndale St. Philadelphia, PA 19116 (215) 677-4206 International Lesch-Nyhan Disease Registry Matheny School and Hospital Institute for Research in Developmental Disabilities PO Box 339 Peapack, NJ 07077 (908) 234-0719 (908) 234-0963 (fax) research@matheny.org Lesch-Nyhan Registry Dept. of Psychiatry New York Univ. School of Medicine 550 First Ave. New York, NY 10016 (212) 263-6458 (212) 629-9523 (fax) andersnl@is2.nyu.edu |
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LEUKEMIA |
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Leukemia Research Fund of Canada Attn: Maureen E. Thornton 936 The East Mall Toronto, ON CAN M9B 6J9 (800) 268-2144 (Canada only) (416) 661-2875 (416) 661-3840 (fax) lrfc@lrfc.org Leukemia & Lymphoma Society 1311 Marnaroneck Ave., 3rd Fl. White Plains, NY 10605 (800) 955-4572 (914) 949-5213 (914) 949- 6691 (fax) http://www.leukemia-lymphoma.org |
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LEUKODYSTROPHY |
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United Leukodystrophy Foundation 2304 Highland Dr. Sycamore, IL 60178 (800) 728-5483 (815) 895-3211 (815) 895-2432 (fax) ulf@tbcnet.com |
-Adrenoleukodystrophy -Zellweger Syndrome -White Matter Disorders -Sulfatidosis, Juvenile, Austin Type |
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LIMB DISORDERS |
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Superkids Peter McLoughlin 60 Clyde St. Newton, MA 02460-2250 |
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LIPOMYELOMENINGOCELE |
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Lipomyelomeningocele Family Support Network 321 Hopewell St. Birdsboro, PA 19508 (610) 582-5937 gmcafee@ptd.net |
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LISSENCEPHALY |
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Lissencephaly Network, Inc. 10408 Bitterroot Ct. Fort wayne, IN 46804 (219) 432-4310 (voice/fax) lta1@is2.nyu.edu The Lissencephaly Network, In.--Canada Division 1549 Regent St. Regina, SK CAN S4N 1S1 (219) 432-4310 http://www.lissencephaly.org |
-Agyria -Warburg Syndrome -Walker-Warburg Syndrome |
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LIVER DISEASE AND TRANSPLANT (PEDIATRICS) |
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Children's Liver Alliance (formerly the Biliary Atresia & Liver Transplant Network, BALT) 3835 Richmond Ave., Box 190 Staten Island, NY 10312-3828 (718) 987-6200 (voice/fax) Livers4Kids@earthlink.net |
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LIVER DISORDERS |
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American Liver Foundation 75 Maiden Ln., Ste. 603 New York, NY 10038-4810 (800) 223-0179 (800) GO-LIVER (465-4837) (888) 4-HEP-ABC (443-7222) (212) 668-1000 (212) 483-8179 (fax) webmail@liverfoundation.org http://www.liverfoundation.org Canadian Liver Foundation 2235 Sheppard Ave. E., Ste. 1500 Toronto, ON CAN M2J 585 (800) 563-5483 (Canada only) (416) 491-3353 (416) 491-4952 (fax) clf@liver.ca http://www.liver.ca |
-South African Genetic Porphyria |
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LONG Q-T SYNDROME |
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International Long Q-T Syndrome Registry Jennifer Robinson University of Rochester Med Ctr, Box 653 Rochester, NY 14642-8653 (716) 275-5391 (716) 473-2751 (fax) http://www.longqt.org/longqtreg.html Sudden Arrhythmia Death Syndromes (SADS) Foundation 508 E. South Temple, Ste. 20 Salt Lake city, UT 84102 (800) 786-7723 (801) 531-0945 (fax) sads@sads.org http://www.sads.org |
-Surdicardiac Syndrome |
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LOWE SYNDROME |
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Lowe Syndrome Association 222 Lincoln St. W. Lafayette, IN 47906 (765) 743-3634 info@lowesyndrome.org |
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LUNG DISEASES |
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American Lung Association 61 Broadway, 6th Fl. New York, NY 10006 (800) LUNG-USA (586-4872) (212) 315-8700 (212) 265-5642 (fax) (212) 315-8872 (fax) info@lungusa.org Canadian Lung Association Attn: Deirdre Freiheit 3 Raymond St Ste 300 Ottawa, ON CAN K1R 1A3 (613) 564-6411 (613) 747-7430 (fax) info@lung.ca http://www.lung.ca |
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LUPUS ERYTHEMATOSIS |
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Lupus Foundation of America Duane Peters, Communications and Advocacy 1300 Piccard Dr., Ste. 200 Rockville, MD 20850 (888) 385-8787 (301) 670-9292 (301) 670-9486 (fax) info@lupus.org SLE Foundation 149 Madison Ave., Ste. 205 New York, NY 10016 (212) 685-4118 (212) 545-1843 (fax) lupus@lupusny.org http://www.lupusny.orgLupus Canada 8 Crown Steel Dr., Ste. 209 Markham ON Canada L3R 9X8 (905) 513-0004 (905) 513-9516 (fax) lupuscanada@bellnet.ca http://www.lupuscanada.org |
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LYME DISEASE |
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|
American Lyme Disease Foundation, Inc. Mill Pond Offices 293 Rt. 100 Somers, NY 10589 (914) 277-6970 (914) 277-6974 (fax) inquire@aldf.com Lyme Disease Foundation 1 Financial Plaza, Gold Bldg., 18th Fl. Hartford, CT 06103-2610 (800) 886-5953 (info line) (860) 525-2000 (860) 525-8425 (voice/fax) lymeffnd@aol.com http://www.lyme.orgLyme Disease Resource Center PO Box 1423 Ukiah, CA 95482 (707) 468-8460 pcm@pacific.net |
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LYMPHANGIOMA |
||
|
AboutFace International 123 Edwards St. Ste 1003 Toronto, ON CAN M5G 1E2 (800) 665-3223 (416) 597-2229 (416) 944-2488 (fax) abtface@interlog.com |
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LYMPHEDEMA |
||
|
NAT'L LYMPHEDEMA NETWORK Saskia R.J. Thiadens, RN Executive Director 1611 Telegraph Ave., Ste. 1111 Oakland, CA 94612-2138 (510) 208-3200 (510) 208-3110 (fax) nln@lymphnet.org |
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MACULAR DISEASES |
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Association for Macular Diseases 210 E. 64th St. New York, NY 10021 (212) 605-3777 (212) 605-3795 (fax) macula@macula.org Macular Degeneration Foundation PO Box 9752 San Jose, CA 95157 (888) 633-3937 (408) 260-1335 (409) 260-1336 eyesight@eyesight.org http://www.eyesight.orgStargardt Macular Dystrophy and Other Juvenile Macular Dystrophies Self Help Network Macular Degeneration International 6700 N. Oracle Rd. Ste. 505 Tucson, AZ 85704 (800) 393-7634 (520) 797-2525 (520) 797-8018 (fax) info@maculardegeneration.org http://www.macular-degeneration.org |
-Stargardt Disease |
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MALIGNANT HYPERTHERMIA |
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|
Malignant Hyprthermia Association Carole Elliott, Administrator 200 Elizabeth St., Rm EC11-307 CCRW, Rm. 2-834 Toronto, ON CAN M5G 2C4 (416) 340-3238 (416) 340-4960 (fax) carole.elliott@uhn.on.ca Malignant Hyperthemia Association of the United States 39 E. State St. PO Box 1069 Sherburne, NY 13460 (800) 644-9737 (607) 674-7901 (800) 674-7910 (fax) mhaus@norwich.net http://www.mhaus.org |
-Succiylcholine Sensitivity |
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MAPLE SYRUP URINE DISEASE |
||
|
Maple Syrup Urine Disease Family support Group Joyce Brubacher 24806 SR 119 Goshen, IN 46526 (574) 862-2992 msud-support@characterlink.net |
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MARFAN SYNDROME |
||
|
Canadian Marfan Association Laura Libralesso Executive Director Centre Plaza Postal Outlet 128 Queen St., S. PO Box 42257 Mississauga, ON Canada L5M 4ZO (905) 826-3223 (905) 826-2125 (fax) info@marfan.ca National Marfan Foundation 382 Main St. Port Washington, NY 11050-3121 (800) 8MARFAN (862-7326) (516) 883-8712 (516) 883-8040 (fax) staff@marfan.org http://www.marfan.org |
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MAST CELL DISEASE, SYSTEMIC |
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|
Mastocytosis Society 433 E. 300 S. Spanish Fork, UT 84660-2147 (801) 798-2032 (801) 794-2980 (fax) cybermorn@uswest.net BillA@Mastocytosis.com |
-Urticaria Pigmentosa -Systematic Mat Cell Disease |
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MCCUNE-ALBRIGHT SYNDROME |
||
|
MAGIC Foundation McCune-Albright Syndrome Division 6645 W. North Ave. Oak Park, IL 60302 (800) 362-4423 (708) 383-0808 (708) 383-0899 (fax) mary@magicfoundation.org |
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|
MENKES DISEASE |
||
|
Corporation for Menkes Disease 5720 Buckfield Ct. Fort Wayne, IN 46804 (219) 436-0137 (phone/fax) |
-Trichopoliodystrophy -Stengel Hair Disease |
|
|
MENTAL ILLNESS |
||
|
Canadian Mental Health Association 2160 Yonge St. Toronto, ON CAN M4S 2Z3 (416) 484-7750 (416) 484-4617 (fax) cmhanat@interlog.com Family Network on Disabilities of Florida, Inc. Jan LaBelle, Executive Director 2735 Whitney Rd. Clearwater, FL 33760 (813) 523-1130 (813) 523-8687 (fax) fnd@fndfl.org http://www.fndfl.orgFederation of Families for Children's Mental Health Barbara Huff, Executive Director 1101 King St., Ste. 420 Alexandria, VA 22314 (703) 684-7710 (703) 836-1040 (fax) ffcmh@ffcmh.org http://www.ffcmh.orgMental Health Association of Colorado 6795 E. Tennessee Ave., Ste. 425 Denver, CO 80224 (303) 377-3040 (303) 377-4920 (fax) http://www.MHAcolorado.orgNational Alliance for the Mentally Ill Colonial Pl. Three 2107 Wilson Blvd., Ste. 300 Arlington, VA 222201 (703) 524-7600 (703) 524-9094 (fax) NAMIOFFC@aol.com http://www.nami.orgNational Mental Health Association 2001 Beauregard St., 12th Fl. Alexandria, VA 22311 (800) 969-6642 (703) 684-5968 (fax) infoctr@nmha.org http://www.nmha.orgNational Mental Health Services Knowledge Exchange Network (KEN) PO Box 42490 Washington, DC 20015 (800) 789-2647 (301) 984-8796 (fax) ken@mentalhealth.org http://www.mentalhealth.orgParents & Children Coping Together-PACCT PO Box 26691 Richmond, VA 23261-6691 (800) 477-0946 (804) 559-6833 (804) 559-6835 (fax) pacct@richmond.infi.net The Parent Connection PO Box O Santa Fe, TX 77510 (800) 839-8876 (409) 756-8321 (409) 925-7773 (fax) Utah Parent Center 2290 E. 4500 S., Ste. 110 Salt Lake City, UT 84117 (800) 468-1160 (UT only) (801) 272-1051 (801) 272-8907 (fax) upc@inconnect.com |
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MENTAL RETARDATION |
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|
The Arc of the United States 1010 Wayne Ave., Ste. 650 Silver Spring, MD 20910 (800) 433-5255 (301) 565-3842 (301) 565-3943 (fax) info@thearc.org Bethphage-Dallas Michelle M. Lynch, Habilitative Specialist/Case Manager 2245 Midway Rd., #300 Carrolton, TX 75006 (972) 866-9989 (972) 991-0834 (fax) donahue@bethphage.org http://www.bethphage.orgBethphage The Lind Center, Ste. A. 4980 S 118th St. Omaha, NE 68137-2220 (402) 896-3884 (402) 896-1511 (fax) mburke@bethphage.org http://www.bethphage.orgThe Roeher Institute Roslyn Ward, Manager, Information Services Kinsmen Bldg., York University, 4700 Keele St. Toronto, ON CAN M3J 9611 (416) 661-9611 (416) 5701 (fax) info@roeher.ca http://www.cacl.caPeople First International PO Box 12642 Salem, OR 97309 (503) 362-0336 (503) 587-8459 (fax) heathd@open.org http://www.people1.orgVoice of the Retarded 5005 Newport Dr., Ste. 108 Rolling Meadows, IL 60008 (847) 253-6020 (847) 253-6054 (fax) vor@compuserve.com http://www.vor.net |
-X-Linked Alpha Thalassemia |
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MENTAL RETARDATION/MENTAL ILLNESS |
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|
(AAMR) American Association on Mental Retardation 444 N Capitol St., Ste. 846 Washington, DC 20001 (800) 424-3688 (202) 387-1968 (202) 387-2193 (fax) anam@aamr.org Developmental Disabilities Nurses Association (DDNA) 1733 H St., Ste. 330 PMB 1214 Blaine, WA 98230 (800) 888-6733 (360) 322-2280 (fax) ddnahq@aol.com http://www.ddna.orgNational Association of the Dually Diagnosed (NADD) 132 Fair St. Kingston, NY 12401 (800) 331-5362 (845) 331-4336 (845) 331-4569 (fax) thenadd@aol.com http://www.thenadd.org |
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METABOLIC DISORDERS |
||
|
Climb The Quadrangle Crewe Hall Climb Bldg. 176 Nantwich Rd. Crewe, CW2 6BG UK (44) 870700326 info@climb.org.uk The World Life Foundation PO Box 571 Bedford, TX 76095-0571 (800) 289-5433 (817) 285-0216 (fax) loubaum@airmail.net |
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MICROCEPHALY |
||
|
FACES-The National Craniofacial Association PO Box 11082 Chattanooga, TN 37401 (800) 332-2373 (423) 26601632 (423) 267-3124 (fax) Faces@mindspring.com Genetic Alliance 4301 Connecticut Ave. NW, Ste. 404 Washington, DC 20008-2304 (202) 966-5557 (202) 966-8553 (fax) (800) 336-GENE (4363) helpline info@geneticalliance.org http://www.geneticalliance.orgMarch of Dimes Birth Defects Foundation 233 park Ave. S New York, NY 10003 (212) 353-8353 (212) 254-3518 (fax) NY639@modimes.org http://www.modimes.orgNational Institute of Neurological Disorders & Strike (NIDS) PO Box 5801 Bethesda, MD 20824 (800) 352-9424 (301) 468-5981 braininfo@ninds.nih.gov http://www.ninds.nih.gov |
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MITOCHONDRIAL DISORDERS |
||
|
United Mitochondrial Disease Foundation Dr. Georgette H. Demes 8085 Saltsburg Rd., Ste. 201 Pittsburgh, PA 15239 (412) 793-8077 (412) 793-6477 (fax) info@umdf.org Muscular Dystrophy Association Bob Mackle: Director of Public Information 3300 E. Sunrise Dr. Tucson, AZ 85718-3208 (800) 572-1717 (520) 529-5300 (fax) mda@mdausa.org http://www.mdausa.org http://www.mdaenespanol.orgMuscular Dystrophy Family Foundation, Inc. 2330 N. Meridian St. Indianapolis, IN 46208-5730 (800) 544-1213 (317) 923-MDFF (6333) (317) 923-6334 (fax) mdff@mdff.org http://www.mdff.org |
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MOEBIUS SYNDROME |
||
|
The Moebius Syndrome Foundation PO Box 147 Pilot Grove, Mo 65276-0147 (660) 834-3406 (660) 834-3407 (fax) vmccarrell@mid.mo-net http://www.moebiussyndrome.cam The Moebius Syndrome News PO Box 20354 Oakland, CA 94620-0354 (510) 835-1318 moebiusca@aol.com Moebius Syndrome Support Group 38883 Fox Holm Dr. Palmdale, CA 93551 (805) 267-2570 (voice/fax) lorit@netport.com http://www.wincom.net/moebius |
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MUCOLIPIDOSIS TYPE IV |
||
|
ML4 Foundation 719 East 17th St. Brooklyn, NY 11230 (718) 434-5067 (718) 859-7371 (fax) ml4@aol.com |
-Sialolipidosis |
|
|
MUCOPOLYSACCHARIDOSIS |
||
|
The National Mucopoly-saccharidosis (MPS) Society 45 Packard Dr. Bangor, Me 04401 (207) 947-1445 (207) 990-3074 (fax) info@mpssociety.org Little People of America National Headquarters Box 745 Lubbock, Texas 79408 (888) LPA-2001 (572-2001) (voice/fax; call first) (806) 797-8830 (voice/fax; call first) Engl./Span LPADataBase@juno.com http://www.lpaonlinee.org |
-Sly Syndome -Sialidosis |
|
|
MULTIPLE ENDOCRINE NEOPLASIA I |
||
|
Multiple Endocrine Neoplasia I Mrs. Cathy McMillan-Fitch Box 100 Meota, SK CAN S0M 1X0 (306) 892-208-2080 (voice/fax) hockey_freak99@hotmail.com |
-Acromegaly |
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MULTIPLE SCLEROSIS |
||
|
Multiple Sclerosis Society of Canada 250 Bloor St. E, Ste. 1000 Toront, ON CAN M4W 3P9 (800) 268-7582 (nearest division office) (416) 922-6065 (416) 922-7238 (fax) info@mssociety.ca National Multiple Sclerosis Society 733 3rd Ave., 6th Fl. New York, NY 10017-3288 (800) 344-4867 (212) 986-3240 (212) 986-7981 (fax) nat@nmss.org http://www.nmss.org |
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MUSCULAR DYSTROPHY |
||
|
Parent Project Muscular Dystrophy Pat Furlong, President 1012 N. University Blvd Middletown, OH 45042 (800) 714-KIDS (5437) (513) 424-0696 (513) 425-9907 (fax) pat@parentprojectmd.org |
-Tarui Disease |
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|
MUSCULAR DYSTROPHY |
||
|
Muscular Dystrophy Association Bob Mackle, Director of Public Information 3300 E. Sunrise Dr. Tucson, AZ 85718-3208 (800) 572-1717 (520) 529-5300 (fax) mda@mdausa.org Muscular Dystrophy Association of Canada 2345 Yonge St., Ste. 901 Toronto, ON CAN M4P 2E5 (800) 567-2873 (Canada only) (416) 488-2699 ext. 160 (416) 488-0107 (fax) motter@mdac.ca http://www.mdac.caMuscular Dystrophy Family Foundation Inc. Judith Duncan, President & CEO Beth Allison, Director of Social Services 2330 N. Meridian St. Indianapolis, IN 46208-5730 (800) 544-1213 (317) 923-6334 (FAX) mdff@mdff.org http://www.mdff.orgSociety for Muscular Dystrophy Information International PO Box 479 Bridgewater, NS CAN B4V 2X6 (902) 685-3961 (902) 685-3962 (fax) smdi@aura.com http://www.auracom.com/~smidi/index.html |
-X-Linked Myotublar Myopathy |
|
|
MYASTHENIA GRAVIS |
||
|
Myasthenia Gravis Foundation of America, Inc. Debora K. Boelz CEO 5841 Cedar Lake Rd., Stte. 204 Minneapolis, MN 55416 (800) 541-5454 (952) 646-2028 (fax) myastheniagravis@msn.com |
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|
MYELIN DISORDERS |
||
|
The Canadian Myelin Research Initiative c/o Julie and Wayne Simmons 4330 Spinningdale Ct. Mississauga, ON CAN L5M 3J8 (905) 567-8843 (905) 567-9189 (fax) myelin@interlog.com The Myelin Messenger 7320 N. Stable Ln. Prescott, AZ 86305 (520) 776-7556 |
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|
MYELOMA |
||
|
International Myeloma Foundation 12650 Riverside Dr., Ste. 206 North Hollywood, CA 91607 (800) 452-2873 (818) 487-7455 (818) 487-7454 (fax) theimf@myeloma.org |
||
|
MYOCLONUS |
||
|
Myoclunus Families United 155 E. 35th St. Brooklyn, NY11234 (718) 252-2133 Myoclonus Research Foundation 200 Old Palisade Rd., Ste. 17D Fort Lee, NJ 07024 (201) 585-0770 |
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|
MYOSITIS |
||
|
National Myositis Association 7720B El Camino Real, Ste. 367 Rancho La costa, CA 92009 (800) 230-0441 (619) 436-2185 |
||
|
MYOTUBULAR MYOPATHY, X-LINKED |
||
|
Myotubular Myopathy Resource Group 2602 Quaker Dr. Texas City, TX 77590 (409) 945-8569 gscoggin@aol.com |
-X-Linked Myotubular Myopathy |
|